Support directed at carers → Provision of information and emotional support for the carer

Here is a list of activities other HAH services have used to optimise the way they provide information, training and support to informal carers.

  • Providing support, reassurance and encouragement to the carer in their role
  • Informing carers as early as appropriate about what HAH can/cannot offer and how it fits in with other services
  • Informing carers what to expect in terms of illness trajectory and increasing burden of care
  • Ensuring carer is informed about and signposted to other services and community support (including services specifically directed at carers) and advocating for the patient and carer if they are unable
  • Informing carers about funding options and available financial support; assisting where needed
  • Enabling (quick) access to an appropriate point of contact 24/7 (e.g., advice line); clarity of who to contact and when is paramount (e.g. via single point of access)